We’re slowly learning our way around JHH. This time we were forced to check out the Wilmer Eye Institute, Dr. Repka specifically. We had been recommended Dr. Repka by Dr. Dorafshar.
I only have pictures from the tech’s checkup, because I stayed in the waiting room with Chad while she saw the actual Dr. (BTW, isn’t “Repka” such a nice eastern-european sounding name?)
The techie–Alex, I think it was– was really good with Katya. He let her touch, and explained everything to her, without being the least bit patronizing. She responded really well, and tried to do everything he asked.
We were all nervous when it came time for the eye-drops. Mother thought she should hold Katya, because she usually doesn’t do well at all with the drops, but the techie asked to be allowed to try his hand, first. He pulled out a little tissue box: “Here, Katya” (Katya grabs tissue and wipes nose) “No, no, Katya! Not for your nose! Here,” (take tissue from her left hand and places it in her right) “*This* one is for you nose, and *this* one,” (hands her a new tissue) “is for your eyes.”
Then he showed her the bottle of eye-drops, and put a drop on her hand: “See Katya? It doesn’t hurt. No owies!” Then he explained to her, with the appropriate gestures, that he was going to put it on her eye-lashes, and that he wanted her to close her eyes and then blink them. (Katya batts her eyelashes) And that she could wipe her eyes when he was done. She did really, really well. I get about teary looking at the pictures, but she never even whimpered. Having her close her eyes was pure genius.
She wasn’t traumatized this time (as opposed to the “Pin the kid down and try to keep their eyes open while you put the drops in” method.) Shutting her eyes to have the drops in was her natural response, and it’s a lot easier to blink wet eyes than it is to try to keep your eyes open while someone you don’t know hovers in your air-space and manuevers a pointy object next to your eye-ball.
We went back to the dim waiting-room while her eyes dilated, and then the “World Renowned” eye specialist, Dr. Repka, called Katya back. He gave her (and mum and dad) the excellent news that (1) her intercranial pressures appeared fine and that (2) her vision is 20/25 in both eyes! (That’s the “Big News” that I mentioned the other day.) 20/25 vision may not seem that big of a deal, but she had been tested before her surgery, and was considered to be close to legally blind. Our observations would agree with this.
Dr. Repka said that such a reversal is “Miraculous!” and that he would have never expected her to have such good vision with her history.
So we’re thrilled about that. What’s not so happy is what we learned the next day at Dr Dorfashar’s.